I am not even sure what I am asking. I guess for any suggestions on where I might be able to go to help heal myself? My story starts April this year. I fell ill. Originally I though I had food poisoning as I fell ill with 24hrs of eating at a particular restaurant. How ever I haven’t stopped being sick. For the first 16weeks I had serious vomiting and diarrhoea. Scans were done and lesions were within my bowls along with chronic inflammation. The lesions were only small but there were multiple. Another 5 weeks goes by and I have colonoscopy and endoscopy were performed however no lesions were found but still signs of chronic inflammation. A battery of tests have been performed and bar a few things everything is coming back normal. The results that I have received that were off (for lack of a better term) do not explain why I am still so ill. I had a small period where the vomiting eased off just recently but I have started vomiting again in the last two weeks and I still have diarrhoea. My GP is drawing blank on what the hell is going on. One of my results showed that I am sucrase and maltrase resistant (enzymes that break down sugars) and my gp now seems to think this is all being caused by preservatives in wheat products here in Australia. Here lies the problem I now have to severely cut things out of my diet. Not just junk food but foods in general. I am frustrated with this. I have been told what I shouldn’t eat but haven’t been given any help or guidance on what I can eat. With the way it’s going I will have to physically cook three meals a day if I want to eat ( by this I mean standing over a stove if want to fucking eat) to top it all off I am experiencing food guilt. While I am struggling to eat for the most part on the few occasions I am hungry I can’t bring myself to actually eat because I can’t work out what I should and shouldn’t have. Then I start feeling guilty. If I put food in my mouth I am only going to make things worse. Which puts me off eating any further and if if I do eat it has to be hella bland… which is bread, rice, potato…. Huge no no’s for me… I can’t win!!! HELP!
6 Replies
Go see a registered dietitian. You are probably eligible for some free visits, so ask your GP about if you qualify. Otherwise you can go to see a dietitian without a referral if you are happy to pay.
I mean surely you go see a specialist… or a dietitician..
Likely a elimination diet is in your future.
Change your though process.
Severe bouts of gastro/vomiting/diarrhoea can cause lifelong intolerances. Something to do with the bacteria and exposing the lining making it more sensitive. Im sure someone in the know can explain it better. For years I've had digestive issues, which I've always blamed lactose for, cutting it out makes a big difference. I've also recently learned that my body just does not like any kind of sugar and whenever I eat something with sugar I bloat up like a puffer fish. Try an elimination diet and see how you go. Make large batches of meals you can have so it makes it easier for you.
Why have you not been referred to a GI specialist?! A GP is not an expert in these matters and should have referred you on as soon as the scans showed up the issues
You need a referral for a dietician or pay out of pocket for one or a nutritionist.
Seems like there are few websites dedicated to this condition that may be helpful- search CSID.
This sounds like me & ifs been 3 years for me and still trying to figure it out. Dr has referred me to rheumatologist and allergy testing now. I am so over it.