autoimmune encephalitis

autoimmune encephalitis

Hi ladies,
I'm just wondering if anyone has a loved one, extended family member, friend etc who has been diagnosed with autoimmune encephalitis, specifically from doing immunotherapy a cancer treatment? I know it's a very rare disease, only 1% of people do get it. I would just like to talk to someone and what their experience was like. I lost my dad 3 months ago from this horrible disease and I am in struggle town knowing we were going to loose him eventually to cancer, but after a short 4 month battle he was gone. So many questions I will never have the answers to, but maybe talking to someone else who has been in my position might just be able to answer some of those 'unanswered questions'. Thanks

Posted in:  Health & Wellbeing

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