Hello dear Sisterhood!
I’m writing this anonymously as it’s still a bit of a sore subject for me.
I have a 2 year old son. At 3 months of age I started noticing small spot like bruises on my sons ears from where his ears had folded over while I was feeding him. I thought it was odd but wasn’t too concerned as he was born prem and he may just need another vitamin K shot. Then I noticed a long linear bruise on his arm from the seam in his onesie and took him to the doctor for advice. My GP agreed that it was unusual and ordered some blood tests, which showed that his clotting factor was abnormal. My GP sent me straight to the emergency ward to see the paediatrician on staff.
This is where things start to go downhill.
The paed listened to what I told him, looked at the blood test results, redid them to check for any changes and everything came back the same. Now, anyone who has had to have blood drawn from a 12 week old baby knows that that’s traumatic enough, but despite 2 abnormal blood results the doctor contacted Child Protection and reported a ‘non-mobile infant with unexplained bruising to his limbs’.
This triggered two things, 1: a full assessment, during which it was noted that my son had unusually stretching skin and hyper mobile joints, and Ehlers Danlos Syndrome (EDS) was discussed (this is important later). The same doctor who suggested it quickly dismissed it as ‘it’s incredibly rare’, despite myself having many of the same symptoms. Mainly being easy bruising, hyper mobility, stretchy and velvety skin, etc.
2: Child Protection issued a supervision order, which meant my children were temporarily placed in the care of my parents.
After 3 long months of court appearances, specialist reports supporting us and many complaints of unprofessional behaviour, non-truths (erroneous report to Child Protection, malicious reports written to the court) and malpractice (subjecting my son to an unsafe amount of X-rays to check for any other injuries, causing him physical injury during the xrays), Child Protection withdrew with apologies from the regional manager, the hospital issued a formal apology (not the doctor, mind you, he has refused to admit any wrongdoing) and we moved on.
But my question tonight is; My son and I have both received an official diagnosis of EDS. Would it be considered harassment if I made an appointment with the doctor that triggered all of this and show him he was in the wrong? Will pursuing this to get closure risk legal action against myself? I desperately want to wave this in his face and show him without a shadow of a doubt that he wrongly caused my family so much distress and trauma.