Hi all this is a very long long post so to those that read and comment thank you very much. Im just looking if any1 has been through similar,Has any ideas of what it may be? Or what can be done? Please I just want Answers thats all 😥
Im looking moreso to Target Australian Commenters as that's were i am.
This is my story my life experience and "Treatment" Ive received over the past 11-12 years for all of my Chronic Pain Issues.
So Im a 31 year old mother to 3 boys. First Birth was 2006 2nd was 2009 3rd was 2013. All normal Births(Vaginal) from memory my Period started at 13ish years old. Its never ever been Regular always was heavy and clot filled. Back then in 2006 obviously my Pains weren't as yet Chronic. But as the days months years went on they have become 😞 So all of my Symptoms are:
Chronic Migraines, Ear and Eye Pain - Pain with Noise and Light. Im in the process of possibly getting a Diagnosis for Multiple Sclerosis as Lesions on my Brain have been Found 🙁
Depression, Anxiety, Chronic Insomnia, Terrible Memory - As time goes on my Memory gets worse!
Costochondritis, Peptic Ulcers, Gord/Gerd, Acid Reflux. All these issues have gotten progressively worse this year.
Pains very bad pains in my Stomach Abdo Pelvis, That goes around to my back and down mostly my right Leg. These Pains have gotten to the point they last days on end and leave me laying in bed!
I have alot of Chronic problems with my Back and Nerves, Sciatica.
IBS, Problems that are just worsening with Frequency of Peeing. I can go 50× a day and still need to go and only a few drops come out. I cant hold long if i do tremendous Pains that often last days. Painful Sex, its like a Sharp burning Pain. I have a problem with Cysts to! Often Small and Pop on their own 🙈😰 I had an Ultrasound last week and it showed a rather large Cysts 42mm with a Peripheral Daughter Cyst. 😱
In the process of getting a Diagnosis for Fibromyalgia. I have Pre Diabetes. Minor Pelvic Congestion Syndrome. And may have Chronic Fatigue Syndrome. And Athritis.
I get Tired very Easily. Cant regulate my body Temp when it gets to hot! If i overheat to much my body tends to just shut down.
I have had problems with UTI'S, Smell, Discharge, Itch - i do not currently have a UTI -
I was in a Car Crash and either my Bowel or Bladder Tore and they had to open me up to stitch in 2006. Ive had my Gallbladder out i dont remember the year. Ive had a Laparoscopy to try Diagnose Endometriosis. All that was found was Scar tissue. Ive had an Endoscopy and a Colonoscopy years ago to.
I had an Appointment to see a Gyno this morning and honestly i feel like as usual(This was not my 1 or 2nd Gyno App) they dont care and just well FOB ME OFF for lack of better words. Nothing was dont and i feel as though they dont care and are just fobbing me off to be some1 elses problem. Gyno spoke to her boss and the original plan was another Laparoscopy BUT as soon as they realized i had a Lap in 16 there overall view was the only thing that was found was Scar Tissue and lots of it so nothing else would have changed even though all of my symptoms. End result was it must be the Scar Tissue Causing my all this Pain and to send me to a Pain Clinic. No further tests on the big ass Cyst i have .... No Blood Tests no pee in a damn cup ... Nothing just shove me off to some1 else!!
If Im fine with having another Laparoscopy and getting more scar tissue to get a Diagnosis they should be to‼ But no they honestly dont care.
Ive been fighting for so long for a diagnosis Im not fussed if there is no cure i just want to know why thats all!
Anyways Thank you for reading. Who thinks i should get another opinion? Advice? Who has been through this?
6 Replies
Omg you poor dear go to a gastro specialist get a 2nd 3rd opinion until someone listens to you
First of all - I’m sorry your going through all this.
Second - have you sought psychological help to process all of this.
Thirdly medical staff have to weigh up the risks and costs associated with tests and whether they are likely to shed new light.
Try to focus on one thing at a time. So follow through the MS line of diagnostic tests and hopefully rule that out.
It does sound like maybe your suffering from something that is systemic rather than individual systems. Is there any family history of autoimmune diseases?
Have you ever looked up Mast Cell Disease?
P.S I have multiple severe long term illnesses and it’s tough being doubted, criticised, judged, misdiagnosed with mental illness, mistreated etc so please believe in yourself and do what is best for you.
First sending lots of love and support to you. There is nothing worse than living in pain.
I have a long medical history like this as well. I have found that I now have an incredibly heightened sense of feeling around my body and pain.
In 2015 I had a mental health breakdown that I am sure was contributed to with my physical wellbeing conditions. At that time I was diagnosed with a condition called functional neurological disorder. I urge you to speak to a really good neuropsychiatrist or neuropsychologist. While there is no cure for FND management of the condition is possible through lots of support for your mental heath (which is I am certain under strain with all of the appointments, test, possible diagnosis and the pain), diet management, physiotherapy.
Scar tissue is incredibly painful and can if in similar places like attached to the bowel and bladder or uterus feel like endometriosis.
I understand that you just want a diagnosis but sometimes there simply isn't one and the more tests, drs, people you talk to about things makes it worse and actually makes all the symptoms more scary. I am not suggesting that you aren't feeling all of the things that you are, just that sometimes there are no answers and we have to learn to live with things.
Hopefully by now (as I see this was originally posted 9days ago) you will have seen the dr and had MS ruled in or out.
I hope that you are going ok.
xx
If doctors aren’t helping I’d go the alternate route and see a good naturopath/reiki natural healing practitioner. Wouldn’t hurt to try 🤷♀️
Look into Medical Medium and Advanced TRS